IC Advocates, Landmark IC Trial Recruiting
Interstitial cystitis (IC) patients—both men and women—here’s a unique opportunity! A national, multi-site study is taking a comprehensive look of what is happening in IC; however, they cannot do this without our help.
Earlier this month, Executive Director Barbara Gordon was invited by the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), one of the National Institutes of Health (NIH), to attend a MAPP Research Network steering committee meeting. The key message—these scientists, doctors, nurses and study coordinators are looking for patients who want to participate in this landmark IC study. It’s a chance to really make a difference and also get a comprehensive health check!
There are six study sites around the nation recruiting patients over 18 years of age. Contact one of the study coordinators to learn if you are eligible to participate. Phone and email numbers for MAPP study coordinators are on the MAPP Research Network home page. Researchers noted that they still have lots of spots for men and for newly diagnosed women (less than two years).