28 Things About My Invisible Illness You May Not Know

  1. The illness I live with is: Interstitial Cystitis, Endometriosis And Pelvic Floor
  2. I was diagnosed with it in the year: 2012
  3. I have had symptoms since: 2012
  4. The biggest adjustment I’ve had to make is: Not Being Able To Do The Things I Used To
  5. Most people assume: I Am Faking It For Attention
  6. The hardest part about mornings are: Getting Out Of Bed
  7. My favorite guilty pleasure is: Kit Kats
  8. A gadget I couldn’t live without is: My Tablet
  9. The hardest part about nights are: Insomnia Due To Pain
  10. Each day I take: Antidepressants, Pain Meds
  11. Regarding alternative treatments I: Have Tried Almost Everything And My Pain Management Doctor Is Running Out Of Ways To Help
  12. Regarding working and career: I Am On Disability
  13. People would be surprised to know: I Am Much Sicker Than I Look
  14. The hardest thing to accept about my new reality has been: Losing Family And Friends
  15. Something I never thought I could do with my illness that I did was: Accept It
  16. The commercials about my illness: Not Sure Actually
  17. Something I really miss doing since I was diagnosed is: Going On Long Walks
  18. It was really hard to have to give up: Food I Love
  19. A new hobby I have taken up since my diagnosis is: Writing
  20. If I could have one day of feeling normal again I would: Go On A Long Walk, Eat My Favorite Foods And Go Swimming
  21. My illness has taught me: To Believe In Myself When Others Don’t
  22. Want to know a secret? My Illness Is Worse Than I Usually Tell People
  23. But I love it when people: Ask How I Am And Actually Want To Talk
  24. My favorite motto, scripture, quote that gets me through tough times is: “You Were Given This Life Because You Were Strong Enough To Live It.”
  25. When someone is diagnosed I’d like to tell them: They Are NOT Alone. Ever.
  26. Something that has surprised me about living with an illness is: I Am More Confident
  27. The nicest thing someone did for me when I wasn’t feeling well was: Brought Me Food And A Book To Read
  28. The fact that you read this list makes me feel: Happy That You Care


Auteur: Karley Linger
My name is Karley and I am a 23 year old Chronic Illness Blogger who suffers from Interstitial Cystitis, Endometriosis, Pelvic Floor Dyfunction, Anxiety and Depression.

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Michelle
Gast
Michelle

I too have had IC since 2012. It is terrible. I had another auto immune disease (ulcerative colitis) in which I had to get my colon removed in 2002. I also suffer from migraines. It is a daily battle. I am doing better now that I have found a combination of medicines, but I hate that I have to take pain meds because of the stigma society puts on you. It makes me feel terrible for having to take pain medicine to live a normal life. Praying for you. It’s good to know we are not alone.

Maureen
Gast
Maureen

Thank you for posting that. Another problem that I feel we also all face is the inability to make plans because you never can be sure that you will be ok to follow through, which I know affects others and relationships.

Karley Linger
Gast

I am always here for anyone who would like to talk. I know how hard dealing with any form of illness, especially one you will have forever is. We can do this. We can be strong. Believe in yourself and you will never fail.