Finding a Way to Express Yourself as an IC Warrior

As an IC Warrior, I have a hard time expressing myself.  When I try to explain to people what Interstitial Cystitis (IC) means, they generally say “yeah, yeah, yeah, you have a pain in your bladder. I get it”. I don’t feel like they get it though. I say things like “Just think of it like a UTI (Urinary Tract Infection) times 100”, hoping they can relate to that pain and those symptoms. They rarely can. Few people actually ‘get it’. Few can comprehend how IC is impacting my quality of life.

With this in mind, I decided to use my camera to try to explain to my family and friends what being an ‘IC Warrior’ meant for me. I headed off to the Dollar Store to find something I could use to make myself look like an IC Warrior! All I could find was a plastic knife and a ninja mask!  I had no idea what I was trying to achieve other than try to explain myself better and raise awareness for IC.  Before I knew it I had 14 photos and I was ready to post. I was very nervous about posting them though as I had never expressed myself in such a way before. Most people didn’t even know I had IC, never mind understand what it meant for me.

I posted my photos on Facebook and something revolutionary seemed to happen! People started to get it! People were saying things like “Wow! I knew you said it was bad but I didn’t realize it was THAT bad!”. I remember telling  How could you not have gotten it! I realize now that my photos really did express a thousand words and communicated things I could not verbally communicate. People were able to interpret them and better understand my struggle.

This medium worked for me so I’m hoping by sharing my photos here in a two part series, I may help someone else communicate their struggles with IC to the world.

Part 1:

I Am An IC Warrior. This means I battle Interstitial Cystitis (IC) EVERYDAY.

I Am An IC Warrior

IC is a chronic, incurable, painful and debilitating bladder disease.

Fiona-McKiernan-IC-Warrior

Research has shown IC can cause a quality of life similar to that of a cancer or kidney dialysis patient.

Fiona-McKiernan-IC-Warrior

But I don’t let it beat me because I am an IC Ninja!

Fiona-McKiernan-IC-Warrior

Some days are bearable.

Fiona-McKiernan-IC-Warrior

But some days are really hard.

Fiona-McKiernan-IC-Warrior

I’m fed up right now because I have been off work for 4 weeks because of IC, recovering from surgery….I have an implant in my spine which helps tap out the pain cycles.


Fiona-McKiernan-IC-Warrior

This is my IC recovery bouquet.

Fiona-McKiernan-IC-Warrior

As an IC warrior I never leave home without these (my catheters).

Fiona-McKiernan-IC-Warrior

IC warriors often despair for the end coming.

Fiona-McKiernan-IC-Warrior

IC Warriors smile on the outside.

Fiona-McKiernan-IC-Warrior

But they are in agony on the inside.

Fiona-McKiernan-IC-Warrior

IC Warriors look like they are healthy and well.

Fiona-McKiernan-IC-Warrior

But inside they feel like they are being stabbed repeatedly and they really would rather be curled up at home in a ball than being out battling in the world.

Fiona-McKiernan-IC-Warrior

Please share for more IC Awareness

So please share my post and spread the word on IC….we need a voice in the world so people can understand and be more compassionate towards our chronic struggle.

My name is Fiona McKiernan and on September 1st, 2015 I proclaimed to the world that I am an “IC Warrior”.

Related Posts

Interstitial Cystitis (IC) Treatment & Nutrit... My name is Melissa Albers (Bsc in nutrition) and I am specialized in pathology, metabolic conditions, psychiatry & medication. The last few years ...
Interstitial Cystitis – You are in pain almo... For those of you who know me, I was diagnosed with ic about a year and a half ago. I still only know a fraction of what it is exactly, but I’m still l...
Invisible Illness And My Life My hardest challenge with my invisible illnesses is dealing with the judgement of people everywhere I go. Well, that and my limitations because of my ...


Auteur: Fiona McKiernan
My name is Fiona McKiernan and on September 1st, 2015 I proclaimed to the world that I am an “IC Warrior”.

3
Leave a Reply

avatar
3 Comment threads
0 Thread replies
0 Followers
 
Most reacted comment
Hottest comment thread
3 Comment authors
ronyNancyvalarie Recent comment authors
  Subscribe  
nieuwste oudste meest gestemd
Abonneren op
valarie
Lid
valarie

I just want to say Thank you for sharing your story. it has shown me I’m not alone…also I’ve used your story to help my friends and family understand just what I’m going through everyday, plus I too want to help find a cure for us and others who suffer like us…Thanks again valarie <3

Nancy
Lid
Nancy

You are so brave! Your sword is a perfect analogy for your battle!!

rony
Gast
rony

Maybe it is too hard for me to feel it fully every minute of my life, so I let mayself really feel your pain once in a while, and feel guilty of not sharing your suffer the rest of the time. I see your heroic battle and admire your power, but mainly feel helpless , failing to help you.
Mother of an IC warrior