Invisible Illness And My Life

My hardest challenge with my invisible illnesses is dealing with the judgement of people everywhere I go. Well, that and my limitations because of my illnesses.

Most people that find out I have an invisible illness say one of a few things. “But you don’t LOOK sick.” “You’re just doing this for attention/pain medications.” “It can’t be THAT bad.” and my personal favorite “You’re too young to be disabled!.”

Let me tell you something, I would never lie and fake my health. You think I WANT to be as sick as I am? To be barely able to get out of bed in the morning? Having to give up most if not all of my daily activities due to the limitations of my health? NO!

I got diagnosed shortly after getting married and I am so grateful for a understanding and loving husband who understands my limits and doesn’t try and push me to do things. He is usually the one to tell me to slow down or rest because the rare times I do feel good, I usually overdue it and end up hurting worse the next day.

This has been a struggle for three years and I’ve hated and resented every second of the disabilities. Every morning I struggle to get out of bed and try to have a normal life as possible. But over the past two years, my limitations have made me re-learn and re-train my body to find my new limits of what I am able to do each day.  These limits cannot be stretched or changed. Otherwise I end up overdoing it and struggling even harder the next day to do the simple things such as making lunch or sweeping the floor.

This probably explains it better than I ever could.

“A person with a chronic illnesses may be dealing with exhaustion, constant aches or pains, dizziness, or cognitive impairments, and yet may appear to be completely healthy on the outside. In fact, one of the hardest issues with having an invisible illness is explaining to others how a person can look healthy and strong but actually feel sick or in pain.

After a chronic illness has set in, not only does one give up certain abilities from their every day life, but they must also battle explaining this loss of freedom to their loved ones.”

Credits photo: amenclinicsphotos ac



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