Living with Interstitial Cystitis (IC) or Bladder Pain Syndrome (BPS) can be challenging. The pain, urgency, frequency, flare-ups, and uncertainty can often feel overwhelming. Many people struggle to find others who truly understand what they are going through.
That’s why IC-Today created a supportive community where people living with Interstitial Cystitis can connect, learn, and support one another.
Our private Facebook group is home to more than 9,300 members who understand the realities of living with IC/BPS.
Whether you’re newly diagnosed, exploring treatment options, adjusting your diet, or simply looking for people who understand, you’ll find a welcoming and supportive community here.
Friends and family may care deeply, but it can be difficult for them to fully understand life with Interstitial Cystitis. Inside our community, you'll connect with people who have experienced similar symptoms, challenges, and frustrations.
Every IC journey is unique. By sharing experiences, members help one another discover new perspectives, coping strategies, and practical tips.
One of the most difficult aspects of living with a chronic condition is feeling isolated. Our goal is to create a place where nobody has to face IC alone.
The IC-Today community is built on empathy, kindness, and mutual respect. Members are encouraged to support one another and contribute positively to the group.
Yes. The IC-Today Facebook Group is completely free to join.
Yes. The group is private, which helps create a safe and supportive environment for members.
Anyone living with Interstitial Cystitis (IC), Bladder Pain Syndrome (BPS), or supporting a loved one with the condition is welcome.
Absolutely. Many members join shortly after diagnosis to learn more about Interstitial Cystitis and connect with others who understand their situation.
Members discuss a wide range of topics including symptoms, flare-ups, diet, lifestyle changes, emotional wellbeing, treatment experiences, and everyday life with IC.
Yes. Sharing experiences is encouraged and often helps other members feel supported and understood.
No. The group is intended for peer support and shared experiences. Members should always consult qualified healthcare professionals for medical advice and treatment decisions.